So I blogged on Monday the 19th, thinking that I would begin finding time to blog more daily again.....and then (insert laughter here) life went back to busy.
My kids can't figure out why I'm not all over planning big birthday parties. But more on that later.
Last week brought up some Wendy concerns. Wendy, if you've been reading for years and/or happen to remember, is our highly sensitive kid. I love her empathy, and I wouldn't change that about her, but it does give us an adrenalin rush now and then. Like on Tuesday when she came home from basketball tryouts and told me that her hands had turned grey (and blue and purple) and swollen during school and lasted all day, to the point that her friends were noticing her hands.
Because she's displayed many symptoms throughout the years that can all be attributed to her sensitivity to other people's pain - I knew enough to ask what went on during her day. What went on during her day was that they began watching a movie (that we were aware of) about the Holocaust in ELA.
Even though this symptom was a new one, my momma bear instincts told me that this symptom was connected. We pulled her from watching the rest of the movie, choosing to have her watch it at home under my watch instead (and with her in control of the volume and breaks) and I told the school that I'd like them to keep an eye on her and I'd like to know if/when it happens again. Meanwhile I had made an appointment for Saturday as she was reluctant to miss any more school.
I got a call on Thursday. The same thing - her hands turned grey and swollen. I left work immediately and got her to the doctor's office while her symptoms were still peaked. Her hands were still dead looking when we got to the doctor's office (and remained so for over eight hours) but all her vitals were fine. Oxygen, blood pressure, heart, etc... Fine.
Oh. And while I had gotten her out of the Holocaust movie at school, she ended up watching a different movie in a different class that Thursday wherein it shared the story of a bullet landing right next to a president's heart.
So on Friday we went to the Children's Hospital in Detroit (and she missed school) and met a cardiologist. To make a long story short - she got another EKG, an echo, and some more listens to - and walked out with a diagnosis of dysautonomia. It's a dysfunction of her automatic nervous system (that she should outgrow by the time she's 20) that causes her blood to pool down in the larger, lower parts of her body - often causing her to feel a bit light headed when she sits up or stands up. When she has a trigger - which in her case is her empathy - it causes that sudden decrease in the blood flowing to her brain, and now in her case - her hands. So she's on a new diet. Two liters of water a day (which she was already drinking) and 5000 mg of salt. Which is a lot. The goal of this diet is to create more blood in her body, thus giving her hands and brain more to pull from when she happens upon another trigger.
Meanwhile, Friday was also Mark's eighth birthday. EIGHT! We had left for Detroit at 9am, and were done with our appointment at about 2. Wendy texted everyone on the way home to say that cake and party were on.
Tired, I was - but the cake and company were good.
Now let's see if I can get a few days of blogging in THIS week. ;